Please use this identifier to cite or link to this item: http://hdl.handle.net/1959.3/191556

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Title

Facilitating needs based cancer care for people with a chronic disease: evaluation of an intervention using a multi-centre interrupted time series design

Author(s)

Waller, Amy;  Girgis, Afaf;  Johnson, Claire;  Mitchell, Geoff;  Yates, Patsy;  Kristjanson, Linda;  Tattersall, Martin;  Lecathelinais, Christophe;  Sibbritt, David;  Kelly, Brian;  Gorton, Emma;  Currow, David

Abstract

Background. Palliative care should be provided according to the individual needs of the patient, caregiver and family, so that the type and level of care provided, as well as the setting in which it is delivered, are dependent on the complexity and severity of individual needs, rather than prognosis or diagnosis 1. This paper presents a study designed to assess the feasibility and efficacy of an intervention to assist in the allocation of palliative care resources according to need, within the context of a population of people with advanced cancer. Methods/design. People with advanced cancer and their caregivers completed bi-monthly telephone interviews over a period of up to 18 months to assess unmet needs, anxiety and depression, quality of life, satisfaction with care and service utilisation. The intervention, introduced after at least two baseline phone interviews, involved a) training medical, nursing and allied health professionals at each recruitment site on the use of the Palliative Care Needs Assessment Guidelines and the Needs Assessment Tool: Progressive Disease - Cancer (NAT: PD-C); b) health professionals completing the NAT: PD-C with participating patients approximately monthly for the rest of the study period. Changes in outcomes will be compared pre-and post-intervention. Discussion. The study will determine whether the routine, systematic and regular use of the Guidelines and NAT: PD-C in a range of clinical settings is a feasible and effective strategy for facilitating the timely provision of needs based care.

Publication type

Journal article

Source

BMC Palliative Care, Vol. 9, no. 2 (Jan 2010), pp. 1-6

Publication year

2010

FOR Code(s)

1117 Public Health and Health Services

Keyword(s)

Advanced cancer;  Anxiety;  Cancer treatment;  Caregivers;  Chronic diseases;  Clinical trials;  Depression;  Health care utilisation;  Multicenter interrupted time series design;  Neoplasm;  Palliative therapy;  Practice guideline;  Quality of life;  Resource allocation

Publisher

BioMed Central

ISSN

1472-684X

Publisher URL

http://dx.doi.org/10.1186/1472-684x-9-2

Copyright

Copyright © 2010 Waller et al., licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Additional information

The trials registration code for this study is ISRCTN21699701.

Full text

Peer reviewed