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Please use this identifier to cite or link to this item: http://hdl.handle.net/1959.3/193255
- Caregiving for the terminally ill: at what cost?
- Aoun, Samar M.; Kristjanson, Linda J.; Currow, David C.; Hudson, Peter L.
- This literature review exposes the nature and extent of physical and psychosocial morbidity and economic disadvantage, home palliative caregivers suffer as a direct result of their caregiving role. Research has demonstrated that caregivers providing support to individuals receiving palliative care report unmet needs for information, communication, service provision and support from health and community services. Three sets of challenges are highlighted in this literature review which help explain why the needs of home palliative caregivers are largely unmet: (i) barriers to seeking help; (ii) a dearth of research-based interventions focused on reducing the negative aspects of caregiving; and (iii) a number of impediments to effective policy and service development for family caregivers. Furthermore, invited submissions from caregivers echoed and confirmed the issues reported in the literature. Recommendations for enhancing caregiver support are outlined.
- Publication type
- Journal article
- Palliative Medicine, Vol. 19, no. 7 (Oct 2005), pp. 551-555
- Publication year
- FOR Code(s)
- 1117 Public Health and Health Services
- Barriers; Impact of caregiving; Informal care giving; Palliative care research; Service provision; Terminal illness; Unmet needs
- Publisher URL
- Copyright © 2005 Edward Arnold (Publishers) Ltd.
- Peer reviewed